Raising the Awareness of Cerebral Palsy

Raising Awareness of Cerebral Palsy

Cerebralpalsyguidance.com is a comprehensive source for information on the complex condition of cerebral palsy.

One of the major goals of National Health Education Week is to raise national awareness of major diseases and promote a better understanding of the role of public education in dealing with them, and this is certainly true in the case of Cerebral Palsy and the impact that it has on patients, their families, and the community as a whole. Cerebral Palsy refers to a group of disorders that damage the brain during the initial developing stages after birth or while still in utero. The resulting damage can affect the body’s ability to move, muscle tone, control, or coordination, reflexes, posture, and balance. There may also be intellectual impairments, vision and hearing problems, and epilepsy. Cerebral Palsy is a permanent condition.

When it comes to what causes Cerebral Palsy to develop in the first place medical science is still a bit in the dark. There is no single cause for the disease and in many cases, it is unknown why a baby is born with it. There is some evidence that certain complications with the birthing process such as asphyxia or lack of oxygen can play a role, but on the whole, it is still a mystery. What researchers are confident of is that there are a bunch of issues that can take place during the development of a fetus that can increase the odds of Cerebral Palsy developing. Chief among these indicators are premature birth, low birth weight, and blood clotting problems. Other possible causes for Cerebral Palsy can include an infection or environmental exposure (e.g. lead poisoning) while in the womb and genetic problems.

When diagnosing Cerebral Palsy there are certain markers that physicians look for as indicators. These markers are not generally the result of any single examination, but instead are part of a lengthy screening process that is usually conducted between the ages of 2 to 5. That said, sometimes the symptoms are severe enough that doctors can make a diagnosis shortly after birth. The screening process is normal for all babies and is designed to see if they are suffering a multitude of possibly life inhibiting conditions such as hypothyroidism, galactosemia, and sickle cell diseases. There are also a set of tests to check metabolism, hearing, and vision, as well as the APGAR (activity, pulse, grimace, appearance, and respiration) score which can all contribute to a diagnosis.

There are no known cures for Cerebral Palsy, however, there is a range of treatments available to help children reach their greatest potential as they develop and mature into adulthood. This often takes the form of assistance in learning how to control motor functions, speech, learning, and dealing with their environment. Medications are also prescribed to help mitigate muscle pain and stiffness, and in some cases, surgery is used to correct scoliosis which is a common trait among sufferers of Cerebral Palsy.

Cerebral Palsy affects approximately 1 million people in the United States and can be devastating if not properly diagnosed at a young age. Treatments are available to help, but perhaps the biggest help comes from raising awareness of this condition and to encourage research that will hopefully one day finding a cure.

 

How to Deal With Common Social Challenges: Spotlight and Giveaway of Social Leaning Books

Guest Blogger, Charity Allen from Social Learning Group

Ever struggle with patiently parenting your kiddos through any of these challenges?

  • Being too bossy
  • Difficulty compromising
  • Getting worried
  • Being inflexible
  • Being too silly
  • Fairness

As parents and educators, we too were hungry for high-quality and kid-friendly resources to help our own children (and our students) develop social skills around common social challenges.

Despite searching far and wide, we couldn’t find the right tools…and so, we made them.

After two years of development with educators and specialists, we are excited to now be using the best resources ever to proactively address common social challenges with our own children and our students!

Get ready to meet The A-Team – a friendship group whose members help each other with social skills & common social challenges in class, at school and also with friends!

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Each book in the series unfolds from the perspective of one of the A-Team members as they struggle on just one specific social skill challenge. As you read a book, you join the characters as they participate in their A-Team meetings, led by their teacher Ms. Corina. Their meetings are where they learn specific strategies and get Top Secret Missions that help them get better at dealing their social challenges.

In this way, parents and educators will find these books to be an invaluable resource for teaching social skills to ALL kids.

The books are all beautifully illustrated and instantly relatable to kids! Parents who were dealing with common social challenges before will now be able to support their kids with specific strategies outlined in digestible bites each book. What a relief!

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Come visit us at sociallearning.org where you can learn more about the A-Team, find resources, get ideas for activities for social learning in our blog posts and get a copy of your favorite A-Team books to use with your kiddos!

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More books are coming each month, so subscribe to our blog or follow us on Twitter and Facebook for updates on the latest releases!

Dealing with a different social challenge with your kiddo? Send us a message, we’d love to hear what you think a topic for our next set of books should be!

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Enter to win a FREE a Social Learning Book of your choice. Seven lucky winners will be chosen.

Two easy ways to enter the giveaway:

  1. Twitter: Follow @SLearningGroup, Retweet this message and Direct Message them your preferred social story.
  2. Facebook: Follow @TheATeamPresents and share/tag a friend in the post.

Good luck, winner will be chosen 10/2/17.

Abilitee Adaptive Wear Spotlight and Giveaway

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Guest Blogger: Marta Elena Cortez-Neavel, Abilitee Adaptive Wear Co-Founder & Managing Director

When Dr. Julie Sanchez realized her patients were struggling to find cute clothing that fit their various medical needs, she decided to do something about it.

Two years ago, Julie came to me with an idea to create a line of fashionable, functional clothing for children with chronic illnesses and other medical needs. Julie, who I am proud to call my Co-Founder, is a wonderful doctor, mother, and friend. She has always provided the best possible care for her patients, but when she learned of the unique challenges these families face at home, she decided she could do more.

Together, we reached out to families for ideas and inspiration, and began designing adaptive clothing and accessories. In February 2016, we launched AbiliteeAdaptiveWear.com. Each item reflects a synthesis of Julie’s medical expertise, my love for fashion, and real patient feedback. Today, we can proudly say that we offer adaptive clothing that meets a wide range of needs, but doesn’t skimp on style.

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Our large-size onesies are popular among special needs families, especially those with older children in diapers or wheelchairs, as they fit ages 2-14 years (or adult size small). Clothing adapted for medical accessories – such as feeding tubes, chemo ports, and ostomies – provides quick, easy access to these sites, making daily care more manageable. Sensory chew jewelry offers relief for children who fidget or chew, especially those with autism, sensory sensitivity, or ADHD. Our cute handmade accessories now include tracheostomy pads, feeding tube pads, and stylish “spill scarves,” but we are always adding more!

Our goal is to become everyone’s favorite online destination when it comes to adaptive clothing, but our vision is to open up the mainstream discourse to include individuals with disabilities and medical needs. If you have design suggestions, or want to get in touch, please send us an email or get connected on social media, Facebook ,Twitter  and Instagram.

Abilitee Adaptive Wear Giveaway

We will be giving away an Abilitee Adaptive Wear Spill Scarf to one lucky winner!
Choose one or more ways to enter:

1. Sign up for email notifications at ChildLifeMommy.com and leave comment below.

2. Facebook: Follow Child Life Mommy and tag a friend.

3. Facebook: Follow Abilitee Adaptive Wear and leave a comment about the giveaway.

4. Twitter: Follow, Like and RT the post to @ChildLifeMommy and @Abilitee_adapt

5. Instagram: Follow @ChildLifeMommy, Like and tag a friend in the post

Good Luck! Winner will be chosen 3/19/17

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