Supporting Tubies with FreeArm Care: Spotlight and Giveaway

Guest Blogger, Misti Staley from FreeArm Tube Feeding Assitant 

The FreeArm lends a hand at the hospital, home and on-the-go. It provides more mobility with syringe feeding, pump feeding, and infusions.
The FreeArm clamps to surfaces such as tables, cribs, strollers, you name it. And works as a travel IV pole, easily bending up to fit in your bag.

It provides consistent feeds and infusions anywhere, anytime. With the FreeArm’s bendable arm, you can take the guesswork out of how high to hold the gravity syringe and keep lines free from kinks.

Inspiration behind FreeArm

Freeman Ellis Staley was born on April 25, 2015. He spent 3.5 months in the NICU at Arkansas Children’s Hospital in Little Rock. His parents, Will and Misti spent every day by his side cheering him on. Freeman was discharged with a g-tube, bolus gravity feeds during the day and pump feeds at night.

While home, Misti and Will were overwhelmed with tube feeding their son. They had medicines to add to his feeds, and multiple therapies to perform all while holding Freeman, and his bolus feeds. They needed a helping hand, so they created one…the FreeArm!

After 5 hard but wonderful weeks at home, Freeman’s breathing became labored and Will and Misti returned to the hospital with Freeman for a chest x-ray. Freeman and his family spent another long 5 months in the PICU before Freeman lost his battle with pulmonary hypertension at almost 10 months old, the day after Valentine’s Day 2016.

It has been 5 years since Will and Misti lost Freeman. They are happy to continue Freeman’s love through the FreeArm and FreeArm Muscle, making IV infusions, bolus, and pump feeding easier for families and hospital staff around the world.

We have teamed up with Medi Teddy for a giveaway to celebrate Child Life Month. Learn more about Medi Teddy from our previous post.

We will choose two winners!

One child life specialist will win- a FreeArm Muscle in the color of their choice to use in their hospital for fun feeding times, a Hope Medi Teddy IV Bag Cover (plastic & reusable)and a Medi Teddy sticker and adult t-shirt.
Tubie family will win- a FreeArm Muscle in the color of their choice, a Bailey Medi Teddy IV Bag Cover (plush & machine washable), and a Medi Teddy sticker and child t-shirt.

 

Choose one or more ways to enter:

  1. Sign up for email notifications at ChildLifeMommy.com and leave a comment below.
  2. Facebook: Follow Child Life Mommy, tag two friends that would love this giveaway.
  3. Instagram: Follow @ChildLifeMommy, @Freearm.Tube.Feeding.Assitant,  @Meddi_Teddy let us know what hospital you are at, and tag two friends that would love this giveaway.
  4. Twitter: Follow, Like, and RT the post to @ChildLifeMommy, tag two friends that would love this giveaway.

Good luck, the winners will be chosen by 3/19/21.

Related Articles

Young Girl Creates Teddy Bear to Help Children Cope with Medical Experiences 

 

Decrease Needle Fear and Pain with Smileyscope

There was a recent study by the US National Library of Medicine that states that 50% of children have needle fear. Adults can also struggle, especially when they have experienced a traumatic needle procedure as a child.

Child life specialists provide developmentally appropriate information about medical procedures and teach children coping skills.  One tool that many specialists incorporate is virtual reality (VR) goggles. Being immersed in a VR game or video can help distract patients and allow medical providers to complete their job without causing trauma.

I’m thrilled to share an amazing new resource that is supporting children with needle fear, Smileyscope. I had the opportunity to play with SmileyScope and see all the features it offers. The one thing that I loved the most is that it provides patients with an underwater experience that aligns with receiving a needle procedure such as a blood draw, vaccination, or port access.

Guest Blogger, Michelle Loughery from Smileyscope 

Understanding from other Child Life Specialists I have talked with, Covid-19 has significantly changed the way your profession supports children and families’ medical experiences. There is now an innovative option that reframes needle procedures – which children fear the most – and can assist you on several levels. Smileyscope will enable you to be better equipped to ‘social distance,’ while still successfully achieving your objectives to improve patients’ fear and anxiety in stressful environments.

Smileyscope is a 510K exempt, Class I medical-grade Virtual Reality (VR) goggle with proprietary software for:

  • Needle procedures – a choreographed “underwater adventure” to help reduce pain, anxiety, and first-stick success, with virtual waves that match when the clinician cleans with antiseptic, and fish nibble when the needle is inserted (this is patented and unique to Smileyscope)
  • Deep breathing – to support patients during times of high anxiety and distress, with a focus on being calm
  • Wellness – mindfulness and relaxation with music therapy, to allow children to virtually visit with seals and kittens, and also experience a virtual “cafe”

The goal is to improve the experience for the patient, parents, and health care providers and to reduce workplace disruption and costly delays or multiple attempts of the procedure. Smileyscope was developed by a multidisciplinary team – including CLSs – with two large RCT trials performed (The Journal of Pediatrics) documenting the efficacy in reducing pain, anxiety, and the need for restraints in patients 4-11 years of age. The facilities in which the trial took place were Monash Children’s and Royal Children’s Hospitals, both in Melbourne, Australia, where Smileyscope as a company was founded.

Smileyscope’s VR goggles are specifically designed for easy disinfection between patients and exceeds hospital infection control standards. It is very easy to learn and use, requiring no change to your standard protocols for blood draws, IV catheters, or port accesses. Although several anesthesiologists have mentioned the need to wait to place an IV, provide a nerve block, or do a lumbar puncture after the child is sedated, all of these processes are done in the OR. Those in this arena understand Smileyscope could benefit them by using it as a distraction initially, eliminating the delay.

Where to Purchase

You can order Smileyscope directly from their website, by calling (888) 300-7117 or emailing sales@smileyscope.com.

Be sure to follow Smileyscope on Facebook, Instagram, and Linkedin.

 

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Taking play to a new level with Parker, your augmented reality bear 

Reimagining the patient experience with SpellBound AR

 

Sandwiched Series: Helping Teens Cope

“Sandwiched” is a series that addresses the specific challenges “Sandwich Generation” caregivers face. Del Oro Caregiver Resource Center has teamed up with Certified Child Life Specialist, Shani Thornton, MS to facilitate these FREE workshops.

Learn how to:

  • Engage in self-care

  • Foster healthy attachments at home

  • Ease children’s fear and anxiety related to COVID-19

  • Help children understand the disease progression of a sick or disabled loved one

  • Find support and develop coping strategies in a new world of social distancing

This week is Session 4: Helping Teens Cope, 12/10/20, 5pmPST.

Register Here Today 

Check out our tip video with content related to this week’s topic.

Click here for more information