Supporting Children in Hospice: Podcast Interview

I’m thrilled to have had another opportunity to speak with Katie Taylor, Certified Child Life Specialist and Founder of Child Life on Call. I have had the privilege to share my work as a specialist in private practice, advocating for my kids with learning differences, and now working with children in hospice.

This is a really challenging population that specialists can work in. I look at it as an honor to be able to be present with a family and hold a safe space for them during a vulnerable and critical time.

Take a listen to our twelve-minute talk on how to best support families when their child is on hospice. Be sure to follow Child Life on Call on Instagram, and Facebook, and subscribe to their amazing podcast.

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Moving in Forever

Helping My Kids Cope with a Learning Difference 

Moving In Forever: A Children’s Book That Helps Families Cope with Loss

How do you explain to children that a loved one is going to die? It’s complicated to find the right words to say while navigating the grief emotions. When I work with families, I often validate how hard it is to verbally use the words death and dying. The one piece of information that I provide is how important it is, to be honest with kids. Adults are often too fearful of telling them because they don’t think kids can handle it. The truth is, that children are incredibly resilient. When we provide safety, security, and a foundation of trust we are providing them with incredible supportive tools to manage the loss.

Incorporating children’s books can help families cope with those tough conversations. I am excited to share a newly published book, Moving In Forever that can help children understand a terminal prognosis, hospice, and death. This book has a gentle way of explaining loss with a spiritual connection to heaven.

Read more

Perinatal Hospice

മലയാളം: വെള്ളിലത്തോഴി എന്ന ശലഭം

I came across this video on Butterfly Footprints Facebook page and it brought me to tears.

It is amazing to see the family centered care approach from the medical team in helping a family through the loss of their newborn baby. It is a beautiful video of how things should be dealt with in this very emotional, tragic and devastating experience.

I have family members who lost their child and never were able to have that sacred time with their baby; to hold, love, take photos and make hand/foot prints. They have nothing tangible to hold on to; no clothing, no blanket, nothing. I am sure that if this type of service and care was provided they may have been able to grieve in a more healthy way.

As a child life specialist, I worked with families in similar situations. Family centered care approach means that you will always honor, support and respect the family’s wishes.

Warning, it can be difficult to watch but it is incredibly touching.


How to Help a Parent Cope with the Loss of a Baby