Tag: Rare Illness

Guest Post: Resource of a Rare Childhood Illness

Parents are always looking for more information about their child’s health diagnosis.  Navigating their way through the unfamiliar territory of treatment plans, medications, terminology and the drastic

Healthcare Experiences
How a Rare Disease Changed My Life

May 20th is Behcet’s Disease Awareness Day. This disease has been part of my life since I was a child. I can still place myself in

Don't let your child's struggles define their future
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