We are more than toy librarians. The invaluable role of a Certified Child Life Specialist

Sami Rundo is a Certified Child Life Specialist at Nationwide Children’s Hospital. She participated in a hospital sponsored event, called DISCOVERYx2019, where she educated and shared her role as a specialist working with pediatric patients and families. The attendees were both medical and non-medical professionals.

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What a Child Wishes For When They Have a Sick Parent

What a child wishes for when they have a sick parent

When I was a little girl, I looked up at the sky every night to search for the brightest star. When I found it, I closed my eyes tight and made the same wish in my head, “Find a cure for my mom.”

I vividly remember repeating it as fast as I could when there was a shooting star, as I believed they had more power in granting wishes.

I never wished for a Barbie doll, a pet or a trip to Disneyland. I just wanted Behcet’s Disease to leave my mom’s body and our family.

This rare, incurable, autoimmune illness had incredible power over us and I wanted to destroy it with my wishful thinking.

As you can guess, it never came true.

However, other unexpected wishes did.

Resiliency, Empathy and Hope.

These aren’t your typical wishes, but they serve a purpose in my life. They guided me through my childhood into adulthood, viewing things with a different perspective.

I remember how angry I would get when I heard peers making fun of someone due to their appearance or struggle with a task. I could feel the pain from the insults and I would speak up. They needed to be aware of an invisible disease.

I wanted people to feel included and accepted as they are.

Often times, I played a care-taking role, retrieving ice packs, medication and a thermometer for my mom. The flare-ups were harsh and restricted her to a dark bedroom while waiting in agony for the pain to diminish.

Those were nights that I searched for a shooting star.

I became very comfortable in a hospital setting and I loved to rummage through their storage cabinets and take whatever I was allowed to, ID bracelets, basins, gauze, tape and of course a gown. I would bring it home and play doctor, foreshadow to my career.

These unexpected wishes have fueled my passion in working with others. I understand how an illness impacts the whole family, as it is never an individualized disease. I know there are always setbacks with an additional diagnosis, complications, and waiting for an FDA approved treatment. I know that people living with chronic illness don’t want to have a pity party or talk about their health, they just want to live a normal life, even though their normal is a bit different. I have a genuine admiration for my mom and other’s that struggle with life’s challenges and still find the courage to push forward.

I’m now 35 and still making wishes.

Related Articles

The Spoon Theory 

My Connection to rare Disease Day

How a Rare Disease Changed My Life

Behcet’s Disease

Fibromyalgia

Help Bring a Smile to a Child’s Face with Project Sunshine’s Holiday Toy Drive

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I am excited to share a spotlight on one of my favorite organizations, Project Sunshine and highlight their annual Holiday Toy Drive.

Ten years ago I was introduced to some volunteers, wearing their bright yellow shirts and smiles upon their faces. I quickly realized how powerful their mission was in creating a safe, therapeutic and fun environment for pediatric patients and their families. Their compassion to help others is contagious, so let’s jump aboard and help them bring cheer to kids this holiday season!

Project Sunshine Holiday Toy Drive 2015

Project Sunshine holiday Toy Drive Collage

Help Project Sunshine spread holiday joy this season to pediatric patients! Project Sunshine is collecting toy donations for children and families facing medical challenges. You can purchase toys and games on their Amazon wish list to be distributed to patients at the organization’s partner hospitals across the country. With your generosity, the holidays will be brighter for children and families going through a very difficult time, both emotionally and financially.

Please help Project Sunshine brighten the holidays for families in need by clicking here to purchase a toy to donate.

If you are interested in organizing a toy drive in your local community, contact Project Sunshine at info@projectsunshine.org. You can also support the organization by using smile.amazon.com and selecting Project Sunshine when you do your holiday shopping, or by making a donation on their website.

Project Sunshine

Project Sunshine empowers a dynamic and dedicated corps of over 15,000 volunteers to bring programming – recreational (arts), educational (tutoring and mentoring) and social service (HIV and nutritional counseling) – to 100,000 children facing medical challenges and their families in 175 cities across the United States and in four international locations. Project Sunshine volunteers spread sunshine, restoring a crucial sense of normalcy to the pediatric healthcare environment. To learn more, please visit www.projectsunshine.org.