Wellness Journal Supporting Children with a Chronic Illness: Spotlight and Giveaway

Living with a chronic illness is life-altering. When children are diagnosed with an illness they need additional supportive tools. Child life specialists play an important role in providing medical education, creative outlets, and coping skills. Often times, they use books with a similar theme that a child can relate to.

I’m excited to introduce a new addition to the children’s book Tiger Livy. The co-author, Erin Garcia has created a wellness journal that can be used with or without the children’s book. Learn more below and be sure to enter the giveaway.

Guest Blogger, Erin Garcia Co-Author of Tiger Livy

The Tiger Livy Wellness Journal will motivate anyone, regardless of their life circumstances. This journal is connected to the children’s book Tiger Livy, the story of a young girl who unexpectedly gets very sick. Her journey towards health inspires empathy, patience, and grit in its readers.

Even if you haven’t read Tiger Livy, this journal is the perfect way to get to know yourself a little bit better. Journalers gain perspective by naming feelings, observations, and concerns, and recalling important life events. Each week’s entry has a place to track gratitude, important events, feelings, and reflect on the prior week.

Establishing this healthy habit even 10-15 minutes a week impacts your overall health and happiness in a significant way. You can also color in the coloring pages if you enjoy tapping into your creative side. Also added are some extra note pages, in case you need a bit of extra room for those busy weeks. At the end of your weekly entries, there is an awesome year in review page to remind you of how much you’ve grown.

Your weekly journal entries will encourage you in challenging times, motivate you to savor happy moments, promote gratitude and overall wellness, and remind you of all the brilliance you possess. We hope you start your Tiger Livy Wellness Journal today and reap all the benefits it has to offer.

Currently, the journal is available on Etsy, and in a few weeks, will be available on Amazon too.

We will be giving away a copy of Tiger Livy Welness Journal to one lucky winner.

Choose one or more ways to enter:

  1. Sign up for email notifications at ChildLifeMommy.com and leave a comment below.
  2. Facebook: Follow Child Life Mommy and tag a friend.
  3. Facebook: Follow Tiger Livy Project.
  4. Instagram: Follow @ChildLifeMommy and @TigerLivyProject tag two friends in the post.
  5. Twitter: Follow, Like, and RT the post to @ChildLifeMommy.

Good luck, the winner will be chosen by 12/2/20.

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Supporting Children with a Chronic Illness: Spotlight and Giveaway of Tiger Livy

Adjusting to life after being diagnosed with a chronic illness can be overwhelming for children and families. Having a resource, such as Tiger Livyis helping kids understand their medical experience, validate emotions and build resilience. I’m excited to feature this newly published book with you and host a giveaway.

Read more

Facing a Chronic Illness With Help From Cellie Coping Kit

Facing a chronic illness with help from cellie coping kit

Spotlight on Cellie Coping Kit

Learning of an illness diagnosis never comes easy, no matter what your age. The challenges surrounding the diagnosis, treatment, and recovery can be overwhelming at times, with each family member coping in their own unique ways. Some will cope well, adjusting to their “new normal”. However, some may need additional support. It’s during these times children and families need extra support to cope and tools, like the Cellie Coping Kit.

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The Cellie Coping Kit is a child friendly, research based tool designed to help children and families cope with illness. The kit includes Cellie, a stuffed toy, coping cards for kids, and a book for caregivers. The kit helps kids acquire new skills and strategies for coping with their illnesses. For example, the coping cards provide suggestions for what to do if a child feels sad, hates taking medicine, or is worried about a doctor’s appointment. The companion book for caregivers mirrors the child’s cards, addressing common stressors related to the illness (for example: my child gets sick on the way to the doctor/hospital) and tips to help them cope. General topics covered include communication about the illness, appointments and procedures, treatment side effects, adjusting to treatment, school and friends, and challenges concerning the whole family.

Research on Cellie suggests that families find the kit helpful, engaging and educational. Children and parents report learning more about their disease and ways to manage the challenges and stressors effectively.

One patient wrote, “I hugged Cellie really tight so I didn’t get hurt” (needle stick). Another patient said, “The pain tips help me. And like the signs, and the pain thermometer, the faces, and the belly breathing card, that helped me a lot”. A caregiver shared, “ I like the Kit because it gives a definition of the disease and details, things to do to help prevent pain crises, and tells you how to deal with them when they do arise”.

The Cellie Coping Kit is designed primarily for children ages 6-12 and can be used by the child on their own, with parents or other trusted adults, in conjunction with a child life specialist, mental health therapist and/or the medical team. Currently three versions of the kit exist: Cancer Cellie (English language), Spanish Cancer Cellie, and Sickle Cell Cellie. Cellie’s future includes additional disease adaptations, currently undergoing research for usability and feasibility.

Screen Shot 2016-05-31 at 6.47.38 AMFor more information about the Cellie Coping Kit and to purchase kit for your child or hospital, please visit www.celliecopingkit.org. Be sure to follow Cellie on Facebook and Twitter!