Child Life Heroes: Serving Patients Under Pressure

One four-year-old boy and his mom will forever be grateful for Brindi Dalton. Brindi is a certified child life specialist (CCLS) at Miller Children’s & Women’s Hospital Long Beach, and one day she was visiting this little boy’s patient room.

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Brindi Dalton, left, and her supervisor Rita Goshert, right, working at Miller Children’s

“There have been so many situations where I didn’t plan to distract a patient, but I was asked to anyway because it was needed. I had nothing with me to use to distract,” Brindi says. Helping young patients cope with the unnerving reality of hospitals is where a CCLS is usually called into action.

That was the story here.

While in the boy’s room, a Registered Nurse (RN) came in to do a urinary catheterization, a procedure in which a long thin tube (called a “catheter”) is inserted to gain access to the bladder and drain its contents.

The boy had experienced catheterizations before and was not looking forward to this one. In the past, the procedure had invoked significant fear and anxiety for him. To help the procedure go smoothly, the RN asked Brindi to distract the boy from the unpleasantness.

But Brindi had no distraction tools with her. She wasn’t ready, but she was called to act, to alleviate the potential suffering of this four-year-old boy and his mom watching. What could she do?

This is one of the many nerve-wracking situations that certified child life specialists encounter on a day-to-day basis. The role of a CCLS in such situations is to provide emotional support for the child and their families through evidence-based methods. These interventions are aimed at educating the child and family on procedures while also reducing stress and anxiety through distractions, games, therapeutic play, and other mediums.

CCLSs have to be able to think on their feet and be flexible because they see many different patients and situations. That’s why every CCLS has a bag of toys, tools, and tricks to calm, entertain, and educate kids. Sometimes those tried-and-true tools become stale or don’t work as effectively with kids who have seen them before.

Brindi gives the typical dialogue for this scenario:

“Would you like to play with the iPad?”

“No.”

“Want to read this book?”

“No.”

Recently Brindi added the SpellBound app to her toolkit, and she’s noticing that it’s changing that dialogue to sound more like this:

“Want to see this card magically come to life?”

“Whaaaat!?! What do you mean?!?”

“The best word to describe it is probably ‘excitement,’” she says. Most kids have never seen anything like SpellBound before.

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They haven’t seen animals and trees coming to life off a paper card before. The SpellBound app distracts patients away from the pain, fear, and anxiety by providing an immersive experience filled with joy and wonder. When using the app, Brindi has seen kids looking away from the screen and behind the device to see if the elephant is actually there or not.

Many times, CCLSs aren’t able to carry a bag of their best tools with them because they’re running from one room to the next, helping wherever they are called.

“A lot of these situations [are] very last minute.” explains Rita Goshert, the Clinical Operations Manager who supervises Brindi and her colleagues. “You’re walking down the hall and hear a crying child. You don’t have time to run back to your office to get something.”

This was exactly the scenario Brindi was in with the four-year-old boy receiving a catheterization. Brindi wasn’t flustered, though. She thought quickly and realized she did have a tool she could use. She had the SpellBound app on her smartphone and a SpellBound Magic Tree card slipped in her name badge.

“The patient loved it so much. He was smiling and laughing throughout the procedure. He was making the same sounds as the animals,” Brindi tells us.

The mother of the boy was absolutely shocked to see her son laughing through a procedure that was so uncomfortable. She later wrote to Brindi to say how appreciative she was of Brindi being there to help him get through a procedure that had caused fear and worry in the past.

It’s moments like these that fuel Brindi and other CCLSs with the energy and passion to do their best work. A CCLS’s job is so much more than just play. It’s about making a child’s day and teaching them about the treatment they’re going through, relieving a parent’s anxiety and answering their questions, letting the patients know that there’s someone there for them. CCLSs are quick on their feet and clutch in tense situations.

Yes, the doctors and nurses might administer the treatment, but the certified child life specialists are often some of the greatest unsung heroes of the hospital, and at SpellBound, we’re grateful to be a small part of making their job a little bit easier and a little bit more fun.

Click here, to learn more about SpellBound.

ReImagining the Patient Experience with SpellBound

 

 

 

Helping Children Cope with Cancer: Spotlight and Giveaway on “Benito, You Can Do It!”

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I am always searching for new resources to help children and families cope with life’s challenges and was excited to discover, Benito, You Can Do It!.  This is a beautifully written and illustrated children’s book for the intent to connect with the Spanish community. The most amazing feature is the dual sided ability of reading it in Spanish and English.

More from the author, Alan Quiñonez

Since I was little boy I always liked to draw. As an adult, I dreamt about being able to apply my love for drawing and storytelling in way that could bring forth something positive into the world.

My dream started to became a reality in November 2011, when I partnered with my dear friend Ysabel Duron, who is cancer survivor and runs the non-profit agency Latinas Contra Cancer in San Jose, CA.

Her agency hosts a Spanish-speaking parent support for families with children with cancer.

And so in early 2012, I explained to the families that I’d love to interview them in order to capture their experience and then present it as children’s book that could help other families that were beginning the journey of childhood cancer.

As I’ve got to know these families they embraced me as one for their own and they guided me to interview their doctors, social workers and child life specialists.

After a year, we had a solid body of research thanks to the profound testimonials from the families, and the expert knowledge and input of the medical team at Lucille Packard Children’s Hospital.

To match the richness of these testimonials I needed to level up my illustration skills, so I started taking art classes and interviewing professionals in the industry.

During the month of September 2013 I ran a Kickstarter campaign to raise funds, and thanks to the support of more than 100 donors, was able to raise over $12,000 to cover the costs of printing the book.

page-collageAbout The Author:alanquinonez-roundAlan Quiñonez is a designer and illustrator working on his dream of telling stories that cross language barriers and foster a message of hope and strength in children and families around the world. He lives with his partner in North Hollywood, CA. His personal website is caricalan.com 

Use the coupon code “CLM1OFF” to save on your copy of Benito, You Can Do It! at benitobooks.comspotlight

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  1. Sign up for email notifications at ChildLifeMommy.com and leave a comment on this post.
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Winner will be chosen 6/30/17, shipping to U.S. residents.

Coping with Loss on Mother’s Day

Mother’s Day is usually filled with Hallmark cards, flowers, and family gatherings as we celebrate moms who selflessly do their best to care for others. However, I often think about the people who are grieving a loss on this holiday. Trying to move through the day without their mom, grandma or child.

The emotions leading to this holiday are heavy and complex, but you aren’t alone. I see your pain, others see your pain and we want to help. We can acknowledge and witness your feelings and find ways to honor the ones who are no longer here in a special way.

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  • Planting a tree or flowers
  • Letting a balloon go with a message attached
  • Wearing the loved one’s favorite color
  • Eating at their favorite restaurant or cooking their favorite meal
  • Going to a place that you often went with them
  • Engaging in their favorite activity
  • Creating a memory box and filling it with things that remind you of them
  • Making a stepping stone
  • Writing a letter to them
  • Drawing a picture
  • On a table cloth- have family and friends write stories or draw pictures
  • Playing their favorite music
  • Sharing stories about them

Maybe this year you create a new tradition and help your heart heal. Remind yourself that you don’t have to walk this journey of grief alone.

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“I Wish That Mommy Never Dies” Helping My Preschooler Cope with Grief and Loss

Butterflies, Hope and My Rainbow Baby