Resources

COVID-19

Supporting Children and Teens During COVID-19    

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Helping Young Children Cope with Grief and Loss 

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Child Life Profession

Bank Street College of Education– Online Graduate Program in Child Life for new students and current Certified Child Life Specialists. They also have amazing workshops, speakers, and opportunities for professional development

Association of Child Life Professionals– The board and certifying committee for child life specialists. Gather Information on the profession, how to become a specialist, and additional resources for parents and caregivers.

Child Life Disaster Relief– This nonprofit is training child life specialists and students to work with communities that have experienced a natural or man-made disaster.

Child Life Cooperative– Helping to advance the profession of child lief through reflection, support, and equipping students.

Child Life on Call A podcast for parents of children with an illness or medical condition.

Child Life Technology– Supports the application of technology to child life specialists.

Child Life United – Offering volunteer and practicum opportunities for child life students.

Functional Health and Wellness-Reflective supervision provided by Korie Leigh, Ph.D., CCLS, CT, FMCHC.

Kids Health– Great site for medical information broken down into three categories; parents, teens, and kids.

Medline Plus– Great source for looking up reliable information on medical needs.

Rabbit Ray– Pediatric medical play teaching tool.

SpellBound– Improves pediatric patients’ healthcare experiences through augmented reality.

Supporting Children with Healthcare Needs in School– Sample of an Individual Healthcare Plan 

The Convenient Classroom– Online courses in preparation for the child life exam and webinars for continuing education.

The Discovery-Rethink Breast Cancer has collaborated with a child life specialist to create animation videos to teach kids about their mother’s diagnosis, treatment, and living with breast cancer.

The Paediatric Nurse– Online professional development courses for medical providers.

Vilas Playroom Assessment Rubric VIPAR– Online assessment tool for your playroom, to measure if it is meeting the needs of all pediatric patients and families.

Walli-Kids Activity Posters– Wall and lap posters to help kids stay active and distracted while in a clinical setting.

Organizations Supporting Children and Families

Amanda Hope Rainbow Angels– Their mission is to bring dignity and comfort to the harsh reality of childhood cancer and other life-threatening diseases. For local AZ residents, free counseling is offered. 

Andrew’s Laughing Gas – is dedicated to bringing much-needed laughter to hospitalized pediatric patients.

Art with Heart – Is a nonprofit organization that helps children overcome trauma through creative expression.

ArtWorks The Naomi Cohain Foundation– Providing creative art programs to children and families facing chronic and life-threatening illnesses. Based in the New York and New Jersey area.

Camp Sunshine– A retreat for children with life-threatening illnesses and their families.

Cape Ivy – A nonprofit that provides fleece ponchos to children coping with a chronic or critical illness.

Cellie Coping Kit– Provides children with a chronic illness valuable resources and activities.

Chemo Duck Supporting children coping with cancer.

Childhood Matters– Supporting and nurturing early childhood through coping tool boxes 

Child Life Wish List.org– They help fund child life programs and bring awareness to the field.

Children’s Cancer Association– Providing free programs of music, friendship, nature to children and families.

Children’s Wish Foundation International– Nonprofit wish-granting organization.

Centre For Pediatric Pain Research– Provides information to healthcare providers and parents on pediatric pain management.

Dancing While Cancering– Providing comfort and sup[port to children coping with cancer

Digging Deep– They provide an expressive outlet, called Shadow’s Edge for adolescents and young adults coping with illness

Docyourstory– Production company specializing in personalized documentary films that capture life stories

Food Allergy Life– Parent advocate and blogger about food allergy awareness

Free Arm Care – Tube feeding assistant 

Health Care Toolbox– Guide to helping children and families cope with illness and injury.

Holiday Heroes– Provides parties and events to pediatric patients in the hospital.

Keaton’s Childhood Cancer Alliance– Providing financial, educational, and emotional support to families impacted by cancer

Layla’s Legacy– Funding innovative pediatric brain cancer research while bringing hope and help to families impacted by the disease.

Little Legacies– Provides one-on-one mentoring in writing for pediatric patients and families faced with serious and life-altering medical conditions.

Luke’s FastBreaks– Provides hospital t-shirts with port access to pediatric patients free of charge.

Luminous Minds– Affordable early literacy tools that will ignite your child’s enthusiasm for learning.

Make a Wish Foundation– Giving wishes to children with a life-threatening illness.

Medi Teddy – Providing comfort to pediatric I.V. and enteral feeding patients

NEGU- Jessie Rees Foundation–  JoyJars for hospitals and care centers

Project Sunshine– Nonprofit organization that provides free educational, recreational, and social programs to children and families living with medical challenges

Sara’s Smiles Foundation– Nonprofit organization that provides resources for children and families battling and surviving cancer

Songs of Love Foundation– Nonprofit organization that creates personalized songs, free of charge for children and adolescents coping with medical, physical, and emotional challenges.

Standish Foundation for Children– This nonprofit is helping to transform the healthcare experience for children and families through education, advocacy, service, and financial support.

Starlight Children’s Foundation– An amazing program creating moments of joy for hospitalized kids.

Taylor’s Tale– Nonprofit supporting families impacted with Batten disease and other rare illnesses.

The Discovery-Rethink Breast Cancer has collaborated with a child life specialist to create animation videos to teach kids about their mother’s diagnosis, treatment, and living with breast cancer.

The Hole in the Wall Gang Camp– This organization provides summer camps and programs to families coping with health challenges.

Team IMPACT– A nonprofit organization connecting children with a life-threatening illness with a college athletic team. The kids become part of the team, attending practices, games, and team meetings.

The Jared Box Project– They work with schools, girl scouts, and team organizations to create shoebox-sized containers filled with toys to be delivered to children in hospitals throughout the country.

The Magic Yarn Project – Creates children’s wigs made of yarn free of charge.

We Are Brave Together – A supportive community for parents of children with special needs.

Wish Upon A Teen They provide programs and comfort to adolescents coping with medical challenges.

Wonderfully Made Kids Co. – Fun health education kits for families.

V.I.P. Hospital Productions– An amazing organization that makes customized books and movies for children and teens in the hospital.

Grief, Loss, and Bereavement Support

Helping Young Children Cope with Grief and Loss: A Guide for Caregivers 

Now I Lay Me Down to Sleep– Nonprofit organization that provides families with a gift of professional remembrance photographs of the loss of a baby

Regali Jewelry– Custom jewelry made from the fingerprints of the special people in your life

Salt Water– An online community that provides comfort, support, and tools for those coping with a loss

Sesame Street: Helping Kids Grieve– Providing caregivers with practical tools to support children’s grief

The Center for H.O.P.E. – Cohen’s Children’s Medical Center of Ne York offers amazing bereavement services to children and families

The Dougy Center– National organization offering resources for families and children dealing with grief

Together We Heal Community – A non-profit supporting families coping with grief 

What’s Your Grief?– Information about grief, support for caregivers, and professionals

Therapeutic Toys and Accessories

Abilitee Adaptive Wear– Adaptive clothing and accessories for children with medical needs

After Mouse.com Touch Table– Touch table video game consoles for pediatric playrooms

Cellie Coping Kit– Provides children with chronic illness valuable resources and activities

Childhood Matters– Supporting and nurturing early childhood through coping tool boxes 

Game on Family – Creates family-friendly, educational games, and books that support mental health and connection.

Get Well Maps– Creates personalized visual maps for children coping with hospitalization or short-term goals

Dr. Scribbles Exam Paper -It transforms exam table paper into an interactive experience that covers the exam room, mobile devices, and the online world

Kelsey’s Kids– Wonderful organization that has created the Marshmallow Launcher, to bring fun into the hospital

Little Darling– Therapeutic lullaby music available in English and Spanish

Nurture SmartCrib Mobile– Designed a therapeutic infant mobile that follows infection control policies

Playopolis Toys– Distraction and multi-sensory stimulation toys

Play Therapy Supply.com– Great site to purchase toys for home, school, or a hospital playroom

Regali Jewelry– Custom jewelry made from the fingerprints of the special people in your life

Smileyscope – VR system to improve needle experiences  

SpellBound– Improves pediatric patients’ healthcare experiences through augmented reality

The Magic Yarn Project – Creates children’s wigs made of yarn free of charge

TivoliToo Inc.– Designs play structures and wall murals for healthcare settings

Walli-Kids Activity Posters– Wall and lap posters to help kids stay active and distracted while in a clinical setting

Books:

Children’s Illness or Medical Condition

A Kid Has Cancer By, Sara Olsher 

Ari the Brave’s Jungle Journey By, Krystal Wallick 

Bastian Adventure Series By, Sofie Berga

Benito, You Can Do It! By, Alan Quinonez

Blood Soup By, Jessica Wilfore 

But Why? Lupus By, Alexis C. Rizzuto

Happily Everly After By, Jack Backe

Hip, Hop, Horray for Brooklyn Bunny By, Jill Harold and Betsy Miller

Hospital Prayers: A Devotional for When Your Child Needs Blessings and Bandaids By, Shannon Alford

It’s Time For Your Checkup By, Shani Thornton, MS, CCLS

Meet The A-Team: A Book About Autism By, Courtney Butorac

Mooshu Worries By, Yona Diamond Dansky

Nutley, The Nut-Free Squirrel By, Stephanie Sorkin

Someone I Love Has Cancer By, Sara Olsher 

Surgery on Sunday By, Kat Harrison

The Donut That Roared By, Joan Yordy Brasher

The Littlest Peanut By, Shannan Wilson

The Puddle Jumper’s Guide to Kicking Cancer By, Elizabeth Billups

Tiger Livy By, Erin Garcia & Betsy Miller

We Can Go Anywhere: My Adventures on Daddy’s Chair By, Glen Dick

Zip-Line By, David Humpherys

Grief, Loss & Bereavement

After a Parent’s Suicide: Helping Children Heal By, Margo Requarth

After a Suicide: An Activity Book for Grieving Kids By, The Dougy Center

Besos de sol, abrazos de luna (Sun Kisses, Moon Hugs) By, Susan Schaefer Bernardo and Courtenay Fletcher

Death is Stupid By, Anastasia Higginbotham

Fire in My Heart, Ice in My Veins By, Enid Samuel Traisman

Forever Connected: A Guide For Parents, Activities to Help Build & Maintain Connections With a Dying Parent By, Caitlin Koch

Fred and Red Say Goodbye By, Austin Schlichtman

God Gave Us Heaven By, Lisa T. Bergren

I Miss You: A First Look at Death By, Pat Thomas

Ida, Always By, Caron Levis

If Grandma Were Here By, Amber Bradbury 

If Only By, Carole Geithner

In My Heart: A Book of Feelings By, Jo Witek

Life is Like the Wind By, Shona Innes

Moving in Forever By, Rebecca Wu

Someone Came Before You By, Pat Schwiebert

Something Small By, Rebecca Honig

Something Very Sad Happened By, Bonnie Zucker

Sun Kisses, Moon Hugs By, Susan Schaefer Bernardo, and Courtenay Fletcher

The Healing Your Grieving Heart Journal for Teens By, Alan D Wolfelt

The Heart and the Bottle By, Oliver Jeffers

The Invisible String By, Patrice Karst

The Invisible String Workbook By, Patrice Karst, and Dana Wyss

The Memory Box: A Book about Grief By, Joanna Rowland

The Next Place By, Warren Hanson

The Rabbit Listened By, Cori Doerrfeld

We Were Gonna Have a Baby, But We Had an Angel Instead By, Pat Schwiebert

Social and Emotional Development

Alex’s Compromising Curse: A Book About How To Compromise With Others  By, Courtney Butorac

Black Cloud Blues By, Christine A. Emery

#BabyLove: My Social Life By, Corine Dehghanpisheh

Beautifully Different By, Dana Salim

Bella Gets Worried: A Book About Dealing With Anxiety By, Courtney Butorac

Divorce is The Worst By, Anastasia Higginbotham

Elephant Wind By, Heather L. Beal

Feelings are Flags By, Abigail Morales

Finding Your Fit: A KId-to-Kid Guide to Fitness, Food, and Feelings By, Kimberly King

Flowers and Bubbles A Story about Coping With Anger and Frustration By, Allison C. Siegel, L.M.S.W.

Frenemy Jane: The Sometimes Friend By, Stephanie Sorkin

Gorilla Thumps and Bear Hugs: A Tapping Solution Children’s Story By, Alex Ortner

Hey Goose! What’s Your Excuse? By, Lisa Griffin

I Can Be a Superhero During a Lockdown By, Rachel Tepfer Copeland

I Said No! A Kid to Kid Guide to Keeping Private Parts Private By, Kimberly King

In My Heart: A Book of Feelings By, Jo Witek

Jack Gets Too Silly: A Book About When it’s OK To Be Silly By, Courtney Butorac

Lily Gets Bossy: A Book About Letting Others Lead By, Courtney Butorac

Max Gets Inflexible: A Book About Staying Flexible By, Courtney Butorac

Mooshu Worries By, Yona Diamond Dansky

My Feelings are a Hurricane By, Krystal Wallick 

My Magic Breath: Finding Calm Through Mindful Breathing By, Nick Ortner

Sun Kisses, Moon Hugs By, Susan Schaefer Bernardo, and Courtenay Fletcher

Tessie Tames Her Tongue By, Melissa Martin

That’s Not Fair!: A Book About How Fair is Not Always Equal By, Courtney Butorac

The Adventures of Frank and Mustard: Stuck in the Mud By, Simon Calcavecchia

The Gift of the Lady Bug By, Carole M. Amber

The Highway Inside of Me By, Julian Cate

The Rhino Who Swallowed a Storm By, Susan Schaefer Bernardo, and Courtenay Fletcher

The Toothless Puppy: A Tale of Differences By, Ashley Almon, and Karen Almon

When Your Parents Divorce: A Kid-to-Kid Guide to Dealing with Divorce By, Kimberly King

Just For Fun

Chocolate Shoes with Licorice Laces By, Stephanie Sorkin

Don’t Ever Look Behind Door 32  By, B.C.R. Fegan

Inspired By, Susan Schaefer Bernardo

The Big Adventures of Tiny House By, Susan Schaefer Bernardo, and Courtenay Fletcher

The Artist Who Loved Cats By, Susan Schaefer Bernardo, and Courtenay Fletcher

The Day That A Ran Away By, B.C.R. Fegan

The Super Silly Wash Your Hands Dance By, Katie Taylor

Sleepy Toes By, Kelli McNeil and Corri Doerrfeld

Parents, Caregivers, and Child Life Specialists 

But I Didn’t Say Goodbye: For Parents and Professionals Helping Child Suicide Survivors By, Barbara Rubel

Child Survivors of Suicide: A Guide Book for Those Who Care For Them By, Rebecca Parkin and Karen DunneMaxim

Everybody Stay Calm By, Dr. Angel Mackenzie

Following Imagination: Activities that move create and play with guided imagery By, Genevieve Lowry, Med, CCLS

Forever Connected: A Guide For Parents, Activities to Help Build & Maintain Connections With a Dying Parent By, Caitlin Koch

How To Help Children Cope Through a Parent’s Serious Illness By, Kathleen McCue

How To Talk So Kids Will Listen and Listen So Kids Will Talk By, Adele Faber and Elaine Mazlish

How To Talk So Little Kids Will Listen By Joanna Faber and Julie King

I Said No! A Kid to Kid Guide to Keeping Private Parts Private By, Kimberly King

Maddie’s Miracles: A Book of Life  By, Scott Kramer

Taking Your Child To The Hospital Or The Doctor By, Patricia Weiner, MS

The Parents’ Guide to Clubfoot By, Betsy Miller

The Parents’ Guide to Hip Dysplasia By, Betsy Miller

The Tapping Solution for Parents, Children & Teenagers: How to Let Go of Excessive Stress, Anxiety and Worry and Raise Happy, Healthy, Resilient Families By, Nick Ortner

Run to the Light By, Laura Edwards

Stars in the Sand: Finding The Light of the Lord in Unexpected Places By, Leigh Snyder

Visible Ink Written pieces from patients at Memorial Sloan Kettering Cancer Center

Be sure to check out my Pinterest page with an additional booklist