Resources

Child Life Profession

Bank Street College of Education– Online Graduate Program in Child Life for new students and current Certified Child Life Specialists. They also have amazing workshops, speakers and opportunities for professional development

Association of Child Life Professionals– The board and certifying committee for child life specialists. Gather Information on the profession, how to become a specialist and additional resources for parents and caregivers.

Child Life Disaster Relief– This nonprofit is training child life specialists and students to work with communities that have experienced a natural or man-made disaster.

Child Life Cooperative– Helping to advance the profession of child lief through reflection, support and equipping students.

Child Life on Call– A podcast for parents of children with an illness or medical condition.

Child Life Technology– Supports the application of technology to child life specialists.

Child Life United – Offering volunteer and practicum opportunities for child life students.

Functional Health and Wellness-Reflective supervision provided by Korie Leigh, PhD, CCLS, CT, FMCHC.

Kids Health– Great site for medical information broken down into three categories; parents, teens and kids.

Medline Plus– Great source for looking up reliable information on medical needs.

Rabbit Ray– Pediatric medical play teaching tool.

SpellBound– Improves pediatric patients healthcare experiences through augmented reality.

Supporting Children with Healthcare Needs in School– Sample of an Individual Healthcare Plan 

The Convenient Classroom– Online courses in preparation for the child life exam and webinars for continuing education.

The Discovery-Rethink Breast Cancer has collaborated with a child life specialist to create animation videos to teach kids about their mother’s diagnosis, treatment and living with breast cancer.

The Paediatric Nurse– Online professional development courses for medical providers.

Vilas Playroom Assessment Rubric VIPAR– Online assessment tool for your playroom, to measure if it is meeting the needs of all pediatric patients and families.

Walli-Kids Activity Posters– Wall and lap posters to help kids stay active and distracted while in a clinical setting.

Organizations Supporting Children and Families

Amanda Hope Rainbow Angels– Their mission is to bring dignity and comfort to the harsh reality of childhood cancer and other life threatening diseases. 

Art with Heart – Is a nonprofit organization that helps children overcome trauma through creative expression.

ArtWorks The Naomi Cohain Foundation– Providing creative art programs to children and families facing chronic and life threatening illnesses. Based in the New York and New Jersey area.

Camp Sunshine– A retreat for children with life-threatening illnesses and their families.

Cellie Coping Kit– Provides children with a chronic illness valuable resources and activities.

Child Life Wish List.org– They help fund child life programs and bring awareness to the field.

Children’s Cancer Association– Providing free programs of music, friendship, nature to children and families.

Children’s Wish Foundation International– Nonprofit wish granting organization.

Centre For Pediatric Pain Research– Provides information to healthcare providers and parents on pediatric pain management.

Digging Deep– They provide an expressive outlet, called Shadow’s Edge for adolescents and young adults coping with illness.

Docyourstory– Production company specializing in personalized documentary films that capture life stories.

Food Allergy Life– Parent advocate and blogger about food allergy awareness

Health Care Toolbox– Guide to helping children and families cope with illness and injury.

Holiday Heroes– Provides parties and events to pediatric patients in the hospital.

Keaton’s Childhood Cancer Alliance– Providing financial, educational and emotional support to  families impacted by cancer.

Layla’s Legacy– Funding innovative pediatric brain cancer research while bringing hope and help to families impacted by the disease.

Little Legacies– Provides one-on-one mentoring in writing for pediatric patients and families faced with serious and life altering medical conditions.

Luke’s FastBreaks– Provides hospital t-shirts with port access to pediatric patients free of charge.

Make a Wish Foundation– Giving wishes to children with a life threatening illness.

Project Sunshine– Nonprofit organization that provides free educational, recreational, and social programs to children and families living with medical challenges.

Sara’s Smiles Foundation– Nonprofit organization that provides resources for children and families battling and surviving cancer.

Songs of Love Foundation– Nonprofit organization that creates personalized songs, free of charge for children and adolescents coping with medical, physical and emotional challenges.

Standish Foundation for Children– This nonprofit is helping to transform the healthcare experience for children and families through education, advocacy, service and financial support.

Starlight Children’s Foundation– An amazing program creating moments of joy for hospitalized kids.

The Discovery-Rethink Breast Cancer has collaborated with a child life specialist to create animation videos to teach kids about their mother’s diagnosis, treatment and living with breast cancer.

The Hole in the Wall Gang Camp– This organization provides summer camps and programs to families coping with health challenges.

Team IMPACT– A nonprofit organization connecting children with a life threatening illness with a college athletic team. The kids become part of the team, attending practices, games and team meetings.

The Jared Box Project– They work with schools, girl scouts and team organizations to create shoe box sized containers filled with toys to be delivered to children in hospitals throughout the country.

The Magic Yarn Project – Creates children’s wigs made of yarn free of charge.

Wish Upon A Teen– They provide programs and comfort to adolescents coping with medical  challenges.

V.I.P. Hospital Productions– An amazing organization that makes customized books and movies for children and teens in the hospital.

Zaenah’s Blanket Foundation– Not-for-profit foundation servicing new mothers and infants with baby essentials in the New York area.

Grief, Loss and Bereavement Support

Now I Lay Me Down to Sleep– Nonprofit organization that provides families with a gift of professional remembrance photographs   of the loss of a baby.

Regali Jewelry– Custom jewelry made from the fingerprints of the special people in your life.

Salt Water– An online community that provides comfort, support and tools for those coping with a loss.

The Center for H.O.P.E. Cohen’s Children’s Medical Center of Ne York offers amazing bereavement services to children and families.

The Dougy Center– National organization offering resources for families and children dealing with grief.

What’s Your Grief?– Information about grief, support for caregivers and professionals.

Therapeutic Toys and Accessories

Abilitee Adaptive Wear– Adaptive clothing and accessories for children with medical needs

After Mouse.com Touch Table– Touch table video game consoles for pediatric playrooms

Cellie Coping Kit– Provides children with a chronic illness valuable resources and activities.

Get Well Maps– Creates personalized visual maps for children coping with hospitalization or short-term goals.

Dr. Scribbles Exam Paper -It transforms exam table paper into an interactive experience that covers the exam room, mobile devices, and the online world.

Handcrafted MRI/CT Machines– Contact Will or Tom to purchase a handcrafted toy sized MRI/CT machine.

Kelsey’s Kids– Wonderful organization that has created the Marshmallow Launcher, to bring fun into the hospital.

Little Darling– Therapeutic lullaby music available in English and Spanish.

Nurture SmartCrib Mobile– Designed a therapeutic infant mobile that follows infection control policies.

Playopolis Toys– Distraction and multi-sensory stimulation toys.

Play Therapy Supply.com– Great site to purchase toys for home, school or a hospital playroom.

The Magic Yarn Project – Creates children’s wigs made of yarn free of charge.

TivoliToo Inc.– Designs play structures and wall murals for healthcare settings.

Regali Jewelry– Custom jewelry made from the fingerprints of the special people in your life.

SpellBound– Improves pediatric patients healthcare experiences through augmented reality.

Walli-Kids Activity Posters– Wall and lap posters to help kids stay active and distracted while in a clinical setting.

Books:

Children’s Illness or Medical Condition

Bastian Adventure Series By, Sofie Berga

Benito, You Can Do It! By, Alan Quinonez

But Why? Lupus By, Alexis C. Rizzuto

Happily Everly After By, Jack and Everly Backe

Hip, Hop, Horray for Brooklyn Bunny By, Jill Harold and Betsy Miller

It’s Time For Your Checkup By, Shani Thornton, MS, CCLS

Meet The A-Team: A Book About Autism By, Courtney Butorac

Nutley, The Nut-Free Squirrel By, Stephanie Sorkin

The Littlest Peanut By, Shannan Wilson

Tiger Livy By, Erin Garcia & Betsy Miller

We Can Go Anywhere: My Adventures on Daddy’s Chair By, Glen Dick

Zip-Line By, David Humpherys

Grief, Loss & Bereavement

Death is Stupid By, Anastasia Higginbotham

Forever Connected: A Guide For Parents, Activities to Help Build & Maintain Connections With a Dying Parent By, Caitlin Koch

Fred and Red Say Goodbye By, Austin Schlichtman

I Miss You: A First Look at Death By, Pat Thomas

Ida, Always By, Caron Levis

In My Heart: A Book of Feelings By, Jo Witek

Life is Like the Wind By, Shona Innes

Someone Came Before You By, Pat Schwiebert

Something Small By, Rebecca Honig

The Heart and the Bottle By, Oliver Jeffers

The Invisible String By, Patrice Karst

The Memory Box: A Book about Grief By, Joanna Rowland

The Next Place By, Warren Hanson

The Rabbit Listened By, Cori Doerrfeld

We Were Gonna Have a Baby, But We Had and Angel Instead By, Pat Schwiebert

Social and Emotional Development

Alex’s Compromising Curse: A Book About How To Compromise With Others  By, Courtney Butorac

Black Cloud Blues By, Christine A. Emery

#BabyLove: My Social Life By, Corine Dehghanpisheh

Beautifully Different By, Dana Salim

Bella Gets Worried: A Book About Dealing With Anxiety By, Courtney Butorac

Divorce is The Worst By, Anastasia Higginbotham

Elephant Wind By, Heather L. Beal

Flowers and Bubbles A Story about Coping With Anger and Frustration By, Allison C. Siegel, L.M.S.W.

Frenemy Jane: The Sometimes Friend By, Stephanie Sorkin

Gorilla Thumps and Bear Hugs: A Tapping Solution Children’s Story By, Alex Ortner

Hey Goose! What’s Your Excuse? By, Lisa Griffin

In My Heart: A Book of Feelings By, Jo Witek

Jack Gets Too Silly: A Book About When it’s OK To Be Silly By, Courtney Butorac

Lily Gets Bossy: A Book About Letting Others Lead By, Courtney Butorac

Max Gets Inflexible: A Book About Staying Flexible By, Courtney Butorac

My Magic Breath: Finding Calm Through Mindful Breathing By, Nick Ortner

Sun Kisses, Moon Hugs By, Susan Schaefer Bernardo and Courtenay Fletcher

Tessie Tames Her Tongue By, Melissa Martin

That’s Not Fair!: A Book About How Fair is Not Always Equal By, Courtney Butorac

The Adventures of Frank and Mustard: Stuck in the Mud By, Simon Calcavecchia

The Gift of the Lady Bug By, Carole M. Amber

The Highway Inside of Me, By Julian Cate 

The Rhino Who Swallowed a Storm By, Susan Schaefer Bernardo and Courtenay Fletcher

The Toothless Puppy: A Tale of Differences By, Ashley Almon and Karen Almon

Just For Fun

Chocolate Shoes with Licorice Laces By, Stephanie Sorkin

Don’t Ever Look Behind Door 32  By, B.C.R. Fegan

The Big Adventures of Tiny House By, Susan Schaefer Bernardo and Courtenay Fletcher

The Day That A Ran Away By, B.C.R. Fegan

Sleepy Toes By, Kelli McNeil and Corri Doerrfeld

Parents, Caregivers and Child Life Specialists 

Following Imagination: Activities that move create and play with guided imagery By, Genevieve Lowry, Med, CCLS

Visible Ink Written pieces from patients at Memorial Sloan Kettering Cancer Center

Forever Connected: A Guide For Parents, Activities to Help Build & Maintain Connections With a Dying Parent By, Caitlin Koch

Taking Your Child To The Hospital Or The Doctor By, Patricia Weiner, MS

The Parents’ Guide to Clubfoot By, Betsy Miller

The Parents’ Guide to Hip Dysplasia By, Betsy Miller

The Tapping Solution for Parents, Children & Teenagers: How to Let Go of Excessive Stress, Anxiety and Worry and Raise Happy, Healthy, Resilient Families By, Nick Ortner

Stars in the Sand: Finding The Light of the Lord in Unexpected Places By, Leigh Snyder

Be sure to check out my Pinterest page with additional book list